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Sunday, June 26, 2011

Our Family Needs Your Prayers....

I'm asking for your prayers for our niece's husband, Jason. Jason had a light stroke a few weeks ago caused from a disease called MoyaMoya disease.  This is a very rare disease and only about one in 2 million have this. We know he has about an 80% blockage on both sides of his brain. Jason has had type 1 diabetes since age 7.

Jason and Sissy, plus her mom, Robin, will be headed to New Orleans Monday to Tulane for some testing and meet with a team of doctors who have some experience with Moyamoya. They will be there the whole week we think. The doctors there feel they can consult with the doctors at Stanford also. They just don't think he can travel all the way to California. They said he needs this surgery ASAP to prevent a massive stroke. Until Monday it's blanket and couch and movie weekend.

There is one website www.moyamoya.com  and it has alot of information. Strange thing they have learned on that is most of the patients who are discovering this in their 30's have fathers who went to vietnam and were exposed to agent orange. Jason's dad was there in 68-69. Jason was born in 71.


 Jason and Sissy have a 4 yr. old little boy that we call our miracle baby. That's a whole other story. Jason is really upset about having to leave Kayl, but hopefully, if Tulane does the surgery, then he can go for visits.

 I appreciate prayers from my blogging friends. Even if you don't leave a comment, please pray for them. They need a miracle. This disease is treatable with the surgery, but Jason's risks are multiplied with him being an insulin dependent diabetic.

 Also if there is anyone out there with any direct information about this, please let me know. Sissy and Jason were in such shock, they didn't even know what questions to ask the doctors.

Thanks so much. Hugs to all,
Shirley

9 comments:

Mildred said...

I am praying for Jason, Sissy, their son and the whole family. Thank you for sharing this prayer request with us.

Charlotte said...

Mildred shared this request with me. I'm so sorry for your family. I'm putting the information on our Prayer Request blog. Here is the url for that blog:
http://spiritualsundayprayerrequest.blogspot.com/
With my prayers and blessings,
Charlotte

Sara said...

Praying for your family, dear friend!

Teresa @ Grammy Girlfriend said...

Praying

MosaicMagpie said...

All of the chemicals we are exposed to, we may not see the damage from but our children may. Certainly frightening to think of someone so young and full of life to have to deal with this. Glad you posted a picture of them, such a great looking family. I will certainly keep them in my prayers.
Deb

Carol at Serendipity said...

Shirley,
You and your family are in my prayers.

Carol

Tracy said...

Shirley,
the prayers are already in progress...God is good and will provide what is needed for all your family!
hugs...

seamsgreat said...

Thoughts and Prayers for you family.

DeeDee said...

I most certainly will keep you all in my continued prayers.. and a big hug too.... hope all goes well..